Been wanting to write this since our own few horror days a couple weeks ago.
The thing you learn early on in medicalized ttc is that nothing is certain, statistics don’t matter as much as your own individual situation, and your locus of control is narrow and limited, even when you play by all the rules.
The thing I learned (again) a couple weeks ago is that none of that changes once you’ve conceived.
I don’t remember if I wrote extensively about it, but in the middle of our first TWW, I noticed that our donor had disappeared from the listings on the cryobank website. Doing some research that Saturday (because of course you learn these things when no one can explain), I learned that one of his offspring had been born with some kind of genetic defect. While we later learned that the defect was still statistically unlikely to affect us and was largely treatable if it did manifest itself, we spent the weekend faced with a series of questions we had not fully considered as we as-blissfully-as-possible entered the world of trying to create a baby.
When I became pregnant, we had the basic blood tests and early ultrasounds that indicated whether the fetus was viable, knowing that those results would go one of two ways and easily accepting the risk of bad news in the hopes of good news, recognizing that miscarriage was always a risk during those early weeks.
When we transitioned to the midwives, we were offered the range of early screens and bloodwork. We considered the options carefully before denying the tests, which can tell you nothing more than “you are at increased risk. Consider a more definitive test that will put you at increased risk for fetal demise.” We chose to forego the screens, knowing that it was unlikely that we would pursue an amnio even if something came back uncertain and believing that the tests could potentially cause a ton of stress.
When we got to the day of the 20-week ultrasound, we were anxious beforehand but naively confident when we finished since the tech had given us no impression that anything might be wrong.
And then we heard that a lot could be wrong. Not likely, they said. We actually never see it.
Except I’m not far enough removed from the land of ttc and I am fully aware how statistics work. They matter when reading an article, when making an argument. They mean nothing when you are faced with higher-than-usual odds that something isn’t right for you.
Suddenly we were encouraged to do one of the blood screens we had previously declined in advance of a second ultrasound to determine if all was well. Suddenly we were forced to consider – really consider hard – what we would do in X situation or Y situation all while knowing that even the screens would give us no definite answer… and even a definitive amnio is not a magic eight ball.
We went for the blood screen. And the ultrasound. Because at the point of knowing that our future child could have a disorder that is “incompatible with life” it felt like any knowledge was better than none and no anxiety was worse than the creeping anxiety of “what-if”
While I spent most of that time worried and upset, in my clearer, more cerebral moments, I thought a lot about the screenings and tests and wondered how we have come so far and yet not far enough. We knew enough to be dangerous, enough to be worried sick, enough to consider a range of possibilities, but we would never know enough to quell the fears. No matter what can be seen in blood and amniotic fluid and sound waves, there is no seeing the future and that was what I wanted more than anything. Because it wasn’t the present living that was challenging but the future living that was already taking place in my head from the moment of the positive test, the first ultrasound, the first kick, the first “oh-you’re-pregnant” comments.
I can only speak to my experience, and I am glad that we had the additional testing done. But I cannot say for certain that I would feel the same way had the tests come back differently. I always thought I would be a “I’d rather know and be able to prepare” kind of gal, but now I realize that no matter what you might know, there is no preparation. And that even if everything comes back fine, you still don’t know how things might end up.
And we still don’t.